The Fox Trial Finder is a website which facilitates Parkinson's disease clinical research by matching research participants in the United States to clinical trials. The Michael J. Fox Foundation hosts the service.

One of the motivations for establishing the platform was a lack of other suitable options for patients to seek and find clinical trials to join.[1] ClinicalTrials.gov is somewhat of an option as it does provide information on all clinical trials.[1] In practice, the Michael J. Fox Foundation felt that its research participants needed a similar service but more customized for their needs.[1] The platform was established in 2012 at a time when such a service was new and other research organizations were establishing similar services.[2] A 2014 paper described the Fox Trial Finder as being part of a broader trend for researchers to support patient communities in organizing themselves to participate in trials.[3]

The Michael J. Fox foundation does a range of other social experiments and interventions which interrelate to the platform and have the overall intent to make for better engagement between clinical trials and research participants.[4] The platform has experimented with conducting research participant study visits through remote video chat.[5][6] In coordination with the platform, the platform has connected research participants with transportation to study sites.[7]

A 2015 evaluation found that the Fox Trial Finder was able to operate as intended and actually match research participants to trials.[8]

References

  1. 1 2 3 Heger, Monica (June 2012). "Clinical trial website struggles to serve as research data hub". Nature Medicine. 18 (6): 837. doi:10.1038/nm0612-837. PMID 22673976.
  2. ↑ Opar, Alisa (July 2013). "New tools automatically match patients with clinical trials". Nature Medicine. 19 (7): 793. doi:10.1038/nm0713-793. PMID 23836201. S2CID 205380922.
  3. ↑ Wicks, Paul (December 2014). "Could digital patient communities be the launch pad for patient-centric trial design?". Trials. 15 (1): 172. doi:10.1186/1745-6215-15-172. PMC 4039333. PMID 24885434.
  4. ↑ Chowdhury, Sohini; Meunier, Claire C; Cappelletti, Lily; Sherer, Todd B (February 2014). "Improving patient participation in Parkinson's clinical trials: the experience of the Michael J Fox Foundation". Clinical Investigation. 4 (2): 185–192. doi:10.4155/CLI.13.127.
  5. ↑ Tarolli, Christopher G.; Zimmerman, Grace A.; Goldenthal, Steven; Feldman, Blake; Berk, Sarah; Siddiqi, Bernadette; Kopil, Catherine M.; Chowdhury, Sohini; Biglan, Kevin M.; Dorsey, E. Ray; Adams, Jamie L. (February 2020). "Video research visits for atypical parkinsonian syndromes among Fox Trial Finder participants". Neurology: Clinical Practice. 10 (1): 7–14. doi:10.1212/CPJ.0000000000000680. PMC 7057071. PMID 32190415.
  6. ↑ Dorsey, E. Ray; Wagner, Joseph D.; Bull, Michael T.; Rizzieri, Ashley; Grischkan, Justin; Achey, Meredith A.; Sherer, Todd; Chowdhury, Sohini; Meunier, Claire; Cappelletti, Lily; Rocker, Charlotte; Richard, Irene H.; Schwarz, Heidi; Kang, Gail; Ahmad, Stacy H.; Biemiller, Rachel A.; Biglan, Kevin M. (14 September 2015). "Feasibility of Virtual Research Visits in Fox Trial Finder". Journal of Parkinson's Disease. 5 (3): 505–515. doi:10.3233/JPD-150549. PMC 4923707. PMID 26406130.
  7. ↑ Frank, Samuel; Berk, Sarah; Hernandez, Laura; Hogarth, Penelope; Shill, Holly A.; Siddiqi, Bernadette; Simon, David K. (December 2019). "Transportation innovation to aid Parkinson disease trial recruitment". Contemporary Clinical Trials Communications. 16: 100449. doi:10.1016/j.conctc.2019.100449. PMC 6804741. PMID 31650070.
  8. ↑ Rocker, Charlotte; Cappelletti, Lily; Marshall, Claudia; Meunier, Claire C.; Brooks, Deborah W.; Sherer, Todd; Chowdhury, Sohini (2015). "Use of an Online Portal to Facilitate Clinical Trial Recruitment: A Preliminary Analysis of Fox Trial Finder". Journal of Parkinson's Disease. 5 (1): 55–66. doi:10.3233/JPD-140522. PMID 25624422.
This article is issued from Wikipedia. The text is licensed under Creative Commons - Attribution - Sharealike. Additional terms may apply for the media files.